Author Archives: Janet Stewart, MSc

Report Describes Teenager with 2 Rare Diseases: Alport Syndrome and ANCA-Associated Vasculitis

Doctors recently reported the case of a 17-year-old boy with Alport syndrome who developed an even more rare disease — ANCA-associated vasculitis — and was successfully treated. This is the first-ever documented case of a patient with both diseases. The case report, “ANCA vasculitis in a patient with Alport…

Heart Your Kidneys Campaign Includes ‘Tech Tattoos’ to Track Water Intake

The National Kidney Foundation has started a Heart Your Kidneys campaign to make people aware of how vital kidneys are to sustaining life. The campaign, which started March 9, World Kidney Day, is aimed at millennials and other young people in particular. Key goals are encouraging people to educate themselves about…

Alport Advocates Join Others at Kidney Patient Summit to Voice Needs to DC Lawmakers

Alport syndrome patients are joining nearly 150 advocates, representing from six patient organizations, on Capitol Hill to meet with lawmakers during the 4th Annual Kidney Patient Summit. The two-day event, organized by the National Kidney Foundation and concluding today, has as its slogan “My Kidneys, My Life” to emphasize how vital are these…