• COL4A5 Protein Measurements in Alport Patients’ Kidneys May Aid in Prognosis, Researchers Say
  • Rare Disease Patient Groups Unite to Preserve Orphan Drug Tax Credit in US
  • Reata’s Bardoxolone Methyl Benefits Patients with Chronic Kidney Disease, TSUBAKI Trial Shows
  • Alport Syndrome Foundation Seeks Therapies for Hearing as Well as Kidney Loss
  • Rare Disease Clinical Trials Need Patient-Centered Outcome Measures, European Researchers Argue
  • Kidney Cells in Urine May Be a New Tool to Diagnose and Treat Alport, Researchers Say
  • CARDINAL Study Shows Bardoxolone Methyl Improves Kidney Function
  • New COL4A3 Gene Mutation Linked to Alport Syndrome Identified in Spanish Family
  • Children’s National, NORD Partner to Create Rare Disease ‘Centers of Excellence’
  • Travel Stipends Available to Attend Rare Disease Week on Capitol Hill in 2018
  • #NORDsummit – Alternatives to Large Placebo Trials, Grant Awards Among Ways FDA Supporting Rare Diseases, Chief Says
  • Researchers Report Rare Case of Alport Syndrome with Lens Abnormalities Prior to Renal Symptoms