News

Advocates from Kidney Organizations Gather for Summit in D.C.

Some 100 advocates from kidney organizations around the country converged on Capitol Hill recently to press lawmakers to improve patient outcomes for the 30 million people living with kidney diseases, including Alport syndrome. Joined by 11-year-old singing ingenue and kidney transplant recipient Angelica Hale, activists from nearly all…

Vienna to Host RARE2019 Meeting on Rare Diseases

About 100 scientists, researchers, pharmaceutical executives, and others will converge on Austria’s capital city early next month for the 2nd International Congress on Advanced Treatments in Rare Diseases. The March 4-5 meeting, to take place at the Hilton Am Stadtpark Vienna, features 27 speakers on a variety of disorders…